I called this morning to the oncology answer desk at Brenners and was happy to hear Dr. Wofford's voice on the other end of the line. As soon as I said I was Julia's Mom, she knew exactly who we were- very reassuring. We still have not received pathology back and therefore have not heard from the COG. I again expressed my concerns to her over last week's appt and she told me she will actually be the one who sees us this Thursday and we are starting at the beginning. Thank you.
I also received an email today from a fellow Wilm's mom who has battled an aggressive form of this disease in her 6 mo old. (Thank you Erin for the referral.) I cannot believe how amazing the internet and blogging works in the lives of so many. I have a draft post about the 'blessings of blogging' from several months ago. After some revision it will definitely be posted....
Anyway, she had some great advice from the perspective of a Wilms' parent. Thank you Jen!! She also included names of doctors for different specialties. As it turns out- God is infinitely amazing- the current chair of the COG and Wilms' tumor specialist is Dr. Jeff Dome at Children's National Hospital- right around the corner from where I am right now at my parents' house! Without complete pathology it would be premature to contact him, but I am fervently praying for his input on her case and will not hesitate to see him in the future.
Dr. Wofford was very reassuring and we did discuss the possibility of radiation. She is still under the feeling we won't need it, but we have to wait and see. We did discuss the option of doing it without sedation since Julia is so cooperative and she thought this was a great idea.
So please be in prayer for the pending pathology, the decisions made, and the course of treatment everyone chooses. Thank you so much!!
7 comments:
Glad to see you are reading "He Still Moves Stones"- great read. Also, the is a book titled "Encourage Me"- highly recommend it, by Charles Swindoll.
Amber,
Austin's college roommate's wife is in residency at CNH if you need another contact point there, too.
Love you,
Jill
I am so glad that you have someone who you can relate to and get info from. I hope that really helps you. God is so good at making a way for His children.
Hi girl, just wanted you to know we missed you this weekend but so glad you got to go to DC. Love you! Praying continually, Lara
I found your blog from your post on LPM blog. Just wanted you to know I care and will be praying for you and your family.
A Siesta
Still praying for your sweet family...
Sister in Christ,
Did you know that there are 17 times in the Gospels that Jesus healed all of the sick that were present? These are the scripture references: Matthew 4:23-24; 8:16-17; 9:35; 12:15; 14:14, 34-35; 15:30-31; 19:2; 21:14; Mark 1:32-34, 39; 6:56; Luke 4:40; 6:17-19; 7:21; 9:11; 17:12-17.
And, there are 47 other times where He healed one or two people at a time. These are the scripture references: Matthew 8:1-4, 5-13, 14-15, 28-34; 9:1-8, 28-33; 12:10-13; Mark 2:1-12; 3:1-5; 5:1-20, 25-43; 7:24-37; 8:22-26; 9:14-29; 10:46-52; Luke 4:33-39; 5:12-15, 17-26; 6:6-10; 7:1-17; 8:27-39, 43-56; 9:37-42; 11:14; 13:11-17; 14:1-5; 18:35-43; 22:51; John 4:46-54; 5:2-15; 9:6-7; 11:43-44).
Nowhere do we find Jesus refusing to heal anyone. Jesus said in John 5:19 and 8:28-29 that He could do nothing of Himself, but only what He saw the Father do. This means that Jesus’ actions prove God’s will to heal…all of the time. Jesus is our example today.
Hebrews 8:6 says, “But now He has obtained a more excellent ministry, inasmuch as He is also Mediator of a better covenant, which was established on better promises.
Isaiah 53:5, “But He was wounded for our transgressions, He was bruised for our iniquities; the chastisement of our peace was upon Him, and by His stripes we are healed.”
1 Peter 2:24, “…who Himself bore our sins in His own body on the tree, that we, having died to sins, might live for righteousness-- by whose stripes you were healed.”
Psalm 91:9-10, “Because you have made the Lord, who is my refuge, even the Most High, your dwelling place, no evil shall befall you, nor shall any plague come near your dwelling; for He shall give His angels charge over you,”
Psalm 103:2-3, “Bless the Lord, O my soul, and forget not all His benefits: Who forgives all your iniquities, who heals all your diseases,”
Did you know that when God speaks, it can’t be altered? It becomes a covenant or a promise. We see this in Psalm 89:34, “My covenant I will not break, nor alter the word that has gone out of My lips.”
God holds His word above His Name, Psalm 138:2, “I will worship toward Your holy temple, and praise Your name for Your lovingkindness and Your truth; for You have magnified Your word above all Your name.
God only gives perfect gifts and He never changes:
James 1:17, “Every good gift and every perfect gift is from above, and comes down from the Father of lights, with whom there is no variation or shadow of turning.”
Hebrews 13:8, “Jesus Christ is the same yesterday, today and forever.”
We need to believe the Word of God, not man’s wisdom. 1 Corinthians 2:5 says, “That your faith should not stand in the wisdom of men, but in the power of God.”
Jesus came to deliver us from this present evil age. Galatians 1:4 says, “…who gave Himself for our sins, that He might deliver us from this present evil age, according to the will of our God and Father.”
Hebrews 2:14, “Inasmuch then as the children have partaken of flesh and blood, He Himself likewise shared in the same, that through death He might destroy him who had the power of death, that is, the devil.”
These promises are for us, as believers, right now, on this earth.
1 John 4:17 says, “Love has been perfected among us in this: that we may have boldness in the day of judgment; because as He is, so are we in this world.”
We don’t need to live in fear, sickness or poverty. Jesus has paid the price for us to be free in Him. The Gospel is nearly too good to be true. There is only one requirement: We must believe Him. It’s all about Jesus!
Mark 11:24 says, “Therefore I say to you, whatever things you ask when you pray believe that you receive them, and you will have them.”
You are blessed.
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