Friday, March 27, 2009

Resting Comfortably in Him

We are settled in the PICU. Bear with me as this may jump around, but I'll try to give everything we know.....
  • The surgery was a complete success. The surgeon is very 'happy' with everything and feels so blessed to see something found so early and treated so quickly. It is hard to believe we began this process only 60 hours ago- amazing.
  • There were no complications, concerns, blood loss, etc. Huge praise!!! Thank you all!!
  • They did put in a portacath as well as two good IV lines. She also has an epidural for pain (thanks Emily!) and Benadryl to help her relax and hopefully sleep. She also has an NG tube- really not a big fan- and won't be eating or drinking for a few days.
  • The stitches are disolvable and internal, so no removal. She has an 8inch incision straight across her stomach and they were able to repair her umbilical hernia as an afterthought- kind of like a free gift for us and her.
  • The surgeon and pathologist are fairly certain it is an early stage Wilms tumor- nephroblastoma. It is hard to be exact because it was found so early so presentation is not the same. The lab results will be back in 2-3 days (this may not include weekends, not sure).
  • We will be here for at least a week. After the results come back they will discuss treatment plans and schedules.
  • There is some concern that her bladder is always so large in scans. Those of you that know her know she drinks water and pees in large quantities, but they will be checking into it. They want to ensure excellent functioning to keep that right kidney strong and healthy. Please pray that this is not a concern.
  • She is resting comfortably now and watching Noggin. Thank God for round the clock preschool programming. It has truly made this process much easier for her and a great distraction.
  • We are in the PICU for at least a day because of the epidural and then will return to her room on the 9th floor.
  • We all had a good long cry in the waiting room and are doing well now. This is the path ordained for us and we are heading down it with confidence. David Crowder's 'Remedy' CD gave us a great time of worship and affirmation through our tears. And we praise God for His faithfulness.
  • Please pray for any decisions we have to make. We had to make a fast, high-pressured decision today about epidural vs. narcotics. Please just pray for God's wisdom and discernment as these arise. (some doctors give recommendations, others don't)
In recovery, right out of surgery. She responds to our questions by nodding her head. She is feeling some pain in her belly, or just pressure (all you moms know this 'epidural' debate- you feel something), and she is moving her legs. She is not agitated or visibly uncomfortable.

No more tears. We are so proud of her!
Back in the PICU, watching Noggin. It was so sweet that all the doctors and nurses in every department have left her feet uncovered and tape-free to be sure she can have her pacis in her toes. She's legendary around here :) The curls help, too :) It's the little things like that that mean so much to us as parents.

12 comments:

Anonymous said...

Love the pacis in the toes JuJu! You sure are one of a kind :) :) :) We are so glad that the surgery went well. We will continue to pray for a full recovery and treatment.

Love,
Bekah & all

Anonymous said...

Amber we're praying for you all and lil JUJU. Thanks for sharing...you are such a ROCK! Julia is such a little miracle! Love, the Dohners

Wilson Ramblings said...

Amber your post made me cry - happy tears, and momma tears. I know you are exhausted and so thankful and so scared as well. You know your Great Physician and I believe you all are in good hands. So sweet to see her holding her pacis in her toes so soon after surgery. Her sweet spirit is ever present! We will continue to pray for you guys. Do you need anything?

Meme said...

We are friends of Kim Cox and have followed the blog this afternoon. We are praying for your sweet daughter and for your family. Our granddaughter was at Baptist/Forsyth for almost 4 months after her birth last year. It is a wonderful hospital. I love the toe pasies! Our prayers are with you.

Debby Webb said...

Praise the Lord. We will keep precious JuJu and you all in our prayers.

Jill Gumbs said...

Amber,

I am praying for your sweet girl! And you, too!

Jill

Jeni said...

Amber- thank you again for the updates. We pray that all of you can get some rest and comfort while waiting for answers. Connor told me at bedtime that he is praying for Julia and "God knows what she needs." He's also putting a picture of her in his bedroom and says he is "keeping praying for her." We lift you up in prayer as you stay in the moment and are equiped to move through next steps.

Anonymous said...

Amber - Julia has been in my prayers all day and she will continue to be. Gibby prayed for Julia tonight in her prayers. Carter is in our thoughts and prayers as well.

Just wanted to share the following with you.

You are never alone -
Above you are God's overshadowing wings (Psalm 91:4)
Beneath you are God's everlasting arms (Deuteronomy 33:27)
Around you the angel of the Lord encamps on all side to deliver you(Psalm 34:7)
Inside you God's peace that passes all understanding guards your heart and mind (Philippians 4:7)
Love and prayers,
Mary Justice

Martha said...

Amber,

Praise God for the successful surgery! The pics of you and Julia and the pacis in her toes made me cry (and smile) at the same time.

I am praying for DEEP REST for all of you tonight. You surely need it after today's events.

Love,
Martha

Five Huitsings said...

We're praying for you. We're blessed by the example of Christ you're setting to those with whom you come into contact. We believe He is the Great Physician.

Jason & Jennifer Huitsing

Kim said...

We are all praying for little Julia. Thankful to God for her successful surgery. We are all following your blog and praying for continued good news. Love the pasies.
Much love and prayers coming your way.
Ted, Kim, Marne, and Meghan

Anonymous said...

Amber & Bill -
I look at these photos and it all comes rushing back to me...I know all too well what you are going through. I will pray to the Lord to give you the strength, courage, compassion, understanding and wisdom needed for the tough decisions. Take His lead and know she will be just fine. Isaiah 41:10.

Jim & Lynn